4. disruption to or lack of appropriate support
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Government and local authority funding cuts.
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Loss of social care services and support package reduction.
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Loss of benefit and housing advice services.
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Loss of user-led organisations and independent advocacy services.
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Decision making delays.
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Needs dismissed, not met or deemed ineligible.
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Inadequate assessment and inaccurate records.
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Practitioner changes and little continuity.
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Inconsistent or insufficient personal budgets/direct payments and ‘top up’ charges.
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Lack of support for socially inclusive activities.
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Bad experiences and disengagement from services.
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‘Gatekeeping’ and rationing.
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Negative effects of diagnostic labelling.
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COVID-19 pandemic related disruptions.
Systemic | Relational
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"[In] my Council, there's a real lack of social inclusion or socially inclusive activities. So, you know, you really have to go to quite extreme measures to demonstrate that you've got domiciliary care needs"
"Being financially assessed, and someone coming back with such a high figure as a contribution towards your personal budget, that you can't afford to make the payment, because many people are on low incomes or...in receipt of benefits"
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